Lymphoedema is a life-long condition and the rehabilitative therapeutic model of holistic approach has to include the self-management considering that it is designed to achieve not only short-medium term results, but also in the long term.
Self-management is achieved through therapeutic education (understanding of cause-evolution-cure of lymphoedema), which requires patient's adherence, and caregiver if necessary, which is reachable through an optimal communication (demonstration of empathy-ability to listen and understand discomfort-use of simple language), the evaluation of the characteristics of the patient /caregiver (age, psychological condition, cultural condition) and the respect for their latency time (understand a concept-be aware of it-put it into practice).
Therapeutic education includes information on hygienic-behavioral rules, self-assessment of oedema, skin care, body weight control, physical activity, combined self-management (manual self-drainage, self-bandage), management of the elastic brace.
With regards to the self-efficacy tool for children the visual art methodology is useful for the description of living and self-managing, while for teenagers the use of cameras to take photos is more useful.
Parents experienced difficulty before receiving a diagnosis and an appropriate treatment and younger children found self-management boring and restrictive and felt negative about the limitations imposed by their parents due to the fear of worsening of lymphoedema.
Studi
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Chroni Oedema Outcome Measure Survey
- Sandro Michelini - MD San Giovanni Battista Hospital - Rome - Italy - Marina Cestari - MD U.O....
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Studio Multicentrico Internazionale
7th International Lymphoedema Framework Conference Siracusa 2017 MOSTRA IL...
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Le Bende Siliconate: quale utilità?
Conti E, *Caldirola R., Bordoni M., Famoso L., Cestari M.Centro Studi Pianeta Linfedema – Terni*Ospedale...
Pubblicazioni
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Lipedema:Usefulness of 3D Ultrasound Diagnostics
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LIMPRINT in Italy
AbstractBackground: To define the profile of patients presenting with chronic edema (CE) in three...
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Dedicato al mio mentore...prof. Mauro Bartolo
Did the Masters of the past know the future? History and update of Italian Phlebolymphology’ - ...
Abstract
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SELF-MANAGMENT AND SELF-EFFICACY TOOL
Lymphoedema is a life-long condition and the rehabilitative therapeutic model of holistic approach has to...
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Lipedema:usefulness of 3D ultrasound diagnostics
Background The diagnosis of Lipedema is based on clinical evaluation, but the high-resolution,...
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La valutazione 3D nella pratica clinica: approccio preliminare
La diagnosi di lipedema è basata sulla valutazione clinica, ma l’esame strumentale ecografico ad...